
There is a project called the
Congenital Heart Defect Awareness Quilt that my family has been so lucky to be a part of. Volunteers show their love one stitch at a time making quilts that honor children with CHD (Congnital Heart Defects) and take these quilts on tour all across America. They are used to help pass legislation and bring about awareness and education. Each child gets their very own block with a heart that represents them personally. The fabric used displays something about their personality. Their name, nicknames, condtions, birthdays (and sadly sometimes their passing day) are put on their block. Then the blocks are stitched together to make a quilt. At least 37 quilts have been made so far. You can see more of them at
http://www.chdquilt.org/. I want to thank Nancy and J.D. (as well as all of the other hard working volunteers) for making Andy's heart block. I am profoundly grateful and very touched at the amount of support she has shown. Sometimes I feel very scared and alone about all of this but if there is one thing that has come from this is support and friends. I believe these children with 'broken' hearts have actually healed many hearts by unifying people in love and understanding for a great cause. By the way, if you don't know the story behind Spiderman I'll tell it to you; One day while holding Andrew in the NICU I was stroking his head and asked him "What are you dreaming about little man?" His nurse walked past and said "He's being Spiderman, being big and strong and catching all the bad guys!" I thought that was so cute. Again, while at the hospital where Andy was having an echo done I noticed on the walls big stickers of Spiderman all over! He was only 2 months old, he was definately trying to tell me who is hero is don't you think? Also, at Primary Childrens Hospital on the 3rd floor the have a lifesize replica of Spiderman- he's even wearing a cast! Anyway, Andy is my little super hero Spiderman. He is strong, he is brave, he is my braveheart. Thank you Nacny and J.D., for honoring my little guy!
